Phoenix, AZ

480-301-4193

8 a.m. to 5 p.m. Mountain Time

At Mayo Clinic’s Neurofibromatosis Clinic, you get the benefit of a team of subspecialized experts in one place, working together to plan your care and coordinate appointments. What might take months to accomplish elsewhere can typically be done within few weeks at Mayo Clinic.

We provide clinical evaluations for neurofibromatosis type 1 and 2 and schwannomatosis, including NF2 related schwannomatosis. Physicians in our Neurofibromatosis Clinic have significant experience treating people with these conditions.

We offer a "clinic without walls," where physicians from a variety of specialties are available for consult.

You’ll get the deep expertise of:

• Geneticist
• Neuro-oncologist
• Neuro-ophthalmologist
• Neurosurgeon
• Plastic surgeon
• Neuroradiologist

Genetic counselors, ophthalmologists, orthopedic surgeons, dermatologists, pain medicine experts and ear, nose and throat (ENT) specialists assist on cases as well, if needed.

At Mayo Clinic, specialists have access to the full array of genetic, imaging, vision, and hearing tests to accurately diagnose neurofibromatosis. At Mayo Clinic we have the ability to perform Whole Body MRI to assess full extent of the disease's progress.

Our doctors are experienced in treatment approaches for all forms of neurofibromatosis, including medical therapies with recently FDA approved agents, surgery, radiotherapy, cochlear implants, and auditory brainstem implants.

Genetic counselors can help you make decisions appropriate for you and your family, considering risk, family goals, and ethical and religious standards.

You will have a supportive care team at Mayo Clinic to help you understand and cope with your diagnosis, and to help coordinate tests and appointments.

This image displays the radiology scanned imaging from a 3 Tesla MRI. The 3 Tesla MRI, while using a less powerful magnetic field compared to the 7 Tesla MRI, still provides clear and detailed images of the body's interior. It is commonly used in clinical settings to diagnose and monitor various medical conditions, offering valuable insights for patient care and treatment planning. However, the clarity of the images produced by the 3 Tesla MRI is not as high as that of the 7 Tesla MRI, which can impact the level of detail visible in the scans.

This image showcases the radiology scanned imaging from a 7 Tesla MRI. The 7 Tesla MRI uses a stronger magnetic field to produce highly detailed images of the body's interior. The detailed brain scans generated by this advanced imaging system assist Mayo Clinic care teams in diagnosing and treating patients with brain tumors. This cutting-edge technology is crucial for ensuring patients receive accurate diagnoses, which guide effective treatment plans.

Mayo Clinic's experts see more than 500 people who have neurofibromatosis each year.

Mayo Clinic in Arizona’s Neurology and Neurosurgery specialties are recognized on Newsweek’s World’s Best Specialized Hospitals 2025 list.

Mayo Clinic in Phoenix/Scottsdale, Arizona is also ranked among the Best Hospitals in Neurology and Neurosurgery in the U.S. News & World Report Best Hospitals rankings.

Mayo Clinic has agreements with many insurance carriers, third-party administrators, and employers.

Arizona

5777 E. Mayo Blvd.

Phoenix, AZ 85054

480-301-4193

8 a.m. to 5 p.m. Mountain Time

Any use of this site constitutes your agreement to the Terms and Conditions and Privacy Policy below.

Terms and Conditions

Privacy Policy

Notice of Privacy Practices

Notice of Nondiscrimination

A single copy of these materials may be reprinted for noncommercial personal use only. “Mayo,” “Mayo Clinic,” “MayoClinic.org,” “Mayo Clinic Healthy Living,” and the triple-shield Mayo Clinic logo are trademarks of Mayo Foundation for Medical Education and Research.

© 1998-2025 Mayo Foundation for Medical Education and Research (MFMER). All rights reserved.